Living with dementia: a social relational perspective to sustainable care (SOREMO)

The number of people living with dementia is increasing rapidly, and questions about organizing care and support in socially sustainable ways are extremely timely in society.

The SOREMO consortium focuses on studying the challenges related to inclusion, decision-making, and coping among people with dementia and their families, as well as the availability of adequate, high-quality services, and what we can do to promote them.

Goals

Researchers at the Finnish Institute for Health and Welfare (THL), together with researchers from the Universities of Jyväskylä and Tampere, investigate what socially sustainable care looks like for people with dementia.

The project studies:

  • What is it like to live with dementia
  • What social and institutional barriers and risks of inadequate services do people with dementia and their caregivers face
  • How their inclusion and decision-making should be supported so that it is realized both in everyday life and in services.

The social scientific research goal is to develop a social-relational theory of dementia that can serve as a foundation for sustainable care.

Implementation

THL researchers primarily analyse THL’s registry data, particularly the RAI (Resident Assessment Instrument) database.

We also participate in analysing qualitative interview data collected by researchers from Tampere and Jyväskylä Universities.

Funding

Research Council for Culture and Society of the Research Council of Finland, Kone Foundation

Partners

University of Jyväskylä, Tampere University

University of Jyväskylä logo. Tampere University logo.

Contact details

Mari Aaltonen

Chief Researcher
tel. +358 29 524 8532
mari.s.aaltonen(at)thl.fi
Mari Aaltonen (LinkedIn)
Mari Aaltonen (ResearchGate)

Johanna Edgren

Senior Researcher
tel. +358 29 524 7317
[email protected]
Johanna Edgren (LinkedIn)

Jokke Häsä

Data Scientist
tel. +358 29 524 8187
[email protected]
Jokke Häsä (LinkedIn)

Pauliina Halonen

Senior Researcher
tel. +358 29 524 7191
[email protected]
Pauliina Halonen (LinkedIn)
Pauliina Halonen (ResearchGate)

Anne-Marie Mäkelä

Doctoral Researcher
tel. +358 29 524 7895
[email protected]
Anne-Marie Mäkelä (LinkedIn)

Updated:

Ageing Equality Management of social and health services