QUANTUM – The health data quality label

QUANTUM is an EU-funded project aimed at creating a common quality and utility labeling system for health data sets in Europe. This system ensures the quality and usefulness of data sets for scientific research and health innovations within the European Health Data Space (EHDS). The labeling system allows researchers, policymakers, and healthcare professionals to identify high-quality data for research, decision-making, and other secondary uses.

Objectives

The goal of the QUANTUM project is to guide the development and implementation of quality and utility labeling for data within the HealthData@EU infrastructure. The European Health Data Space (EHDS) regulates the use of health data in research, innovation, and decision-making. The goal of EHDS is to improve the quality and usability of health data across Europe. The QUANTUM project supports this goal.

Implementation

The project will implement the following components:

• Conceptualize and develop a quality and utility labeling system for data, which will also include a maturity model for data holders.
• Develop a tool for assessing and labeling the quality and utility of data sets and the maturity of data holders. This tool will be tested and piloted by various health data holders, such as healthcare organizations and research institutions, to ensure that the system meets the requirements and standards of HealthData@EU.
• Analyze challenges encountered during implementation to ensure the transferability and sustainability of the labeling system as part of the EHDS implementation.
• Develop training programs and workshops to help various stakeholders understand and utilize the labeling system. The project consortium includes data producers, data holders, bodies responsible for data access, and end users.

Partners

The project consortium includes 35 partners from 15 countries. The consortium is coordinated by the Spanish Aragon Institute of Health Sciences (IACS). From Finland, the Finnish Institute for Health and Welfare (THL) and Helsinki University Hospital (HUS) are involved.

THL is participating in several work packages, including developing dimensions and metrics for quality assessment and piloting the quality assessment tool.

The project collaborates with the HealthData@EU initiative, which develops the infrastructure for secondary use of health data in the EU.

Funding

European Commission, Horizon Europe programme

Contact information

Mari Mäkinen
Senior Planning Officer
tel. +358 29 524 7746
[email protected]

Persephone Doupi
Team Manager, Chief Physician
tel. +358 29 524 7383
[email protected]