Julkaisut

Kansallisia julkaisuja

Hammar T, Leppäaho S, Toikka I, Kylänen M ja Heikkilä R (2018). Kunnat ovat varautuneet palliatiivisen hoidon ja saattohoidon järjestämiseen – erityisosaamista tarvitaan kotihoidon ja ympärivuorokautisen hoidon tueksi. Tutkimuksesta tiiviisti 36, joulukuu 2018. Terveyden ja hyvinvoinnin laitos, Helsinki.

Leppäaho S, Hammar T ja Kylänen M (2019). Kuusi askelta kohti laadukkaampaa palliatiivista hoitoa. Vanhustyö-lehti 3/2019.

Kylänen M, Leppäaho S, Kuitunen-Kaija O (2018). Tee hoitotahto! (pdf) Vanhustyö-lehti 5/2018.

Kylänen M, Andreasen P, Leppäaho S, Hammar T, Heikkilä R, Luoma M-L, Finne-Soveri H (2016). Eurooppalainen elämän loppuvaiheen hoidon tutkimus- ja kehittämishanke PACE. Vanhustyö-lehti  6/2016.

Saarto T, Finne-Soveri H ja asiantuntijatyöryhmät. Toimitus: Hammar T, Leppäaho S ja Toikka I (2019). Palliatiivisen hoidon ja saattohoidon tila Suomessa. Alueellinen kartoitus ja suositusehdotukset laadun ja saatavuuden parantamiseksi. Sosiaali- ja terveysministeriön raportteja ja muistioita 2019:14.

Kylänen M ja Leppäaho S (2019). Hoitohenkilöstön palliatiivisen hoidon osaaminen kuudessa Euroopan maassa. SlideShare-esitys.

Payne S, Froggatt K, Sowerby E, Collingridge Moore D, Hockley J, Kylänen M, Oosterveld-Vlug M, Pautex S, Szczerbińska K, Van Den Noortgate N & Van Den Block L. PACE Steps to Success Programme. Steps towards achieving high quality palliative care in your care home. Information Pack. Vrije Universiteit Brussel (VUB) 2019. Suomenkielisen teoksen toimittajat: Hammar T, Leppäaho S & Kylänen M. PACE-toimintamalli: Kuusi askelta palliatiivisen hoidon kehittämiseen. Terveyden ja hyvinvoinnin laitos 2019.
Saatavilla pyydettäessä sähköpostilla suvi.leppaaho(a)thl.fi tai marika.kylanen(a)thl.fi.

Videotallenteet: Laadukas palliatiivinen hoito ja saattohoito Euroopassa: PACE-hankkeen juhlaseminaari 28.1.2019, Helsinki, THL.

Kansainvälisiä julkaisuja

Andreasen P, Finne-Soveri H, Deliens L, Van den Block L, Payne S, Gambassi G, Onwuteaka-Philipsen B, Smets T, Lilja E, Kijowska V,  Szczerbińska K, on behalf of PACE consortium (2019). Advance directives in European long-term care facilities: a cross-sectional survey. BMJ Supportive & Palliative Care. Published Online: 2019 May 21.

Barańska I, Kijowska V, Engels Y, Finne-Soveri H, Froggatt K, Gambassi G, Hammar T, Oosterveld-Vlug M, Payne S, Van Den Noortgate N, Smets T,  Deliens L, Van den Block L, Szczerbińska K, on behalf of PACE (2019). Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study. Journal of the American Medical Directors Association. Volume 21, Issue 3, March 2020.

Froggatt K, Payne S, Morbey H, Edwards M, Finne-Soveri H, Gambassi G, Pasman HR, Szczerbinska K, Van den Block L, on behalf of PACE (2017). Palliative care development in European care homes and nursing homes: application of a typology of implementation. J Am Med Dir Assoc. Published Online: 2017 April 12.

Froggatt K, Arrue B, Adwards M, Finne-Soveri H, Morbey H, Payne S, Szczerbinska K, Van Den Noortgate N, Van den Block L (2017). Palliative care systems and current practices in long term care facilities in Europe. Report of the EAPC Taskforce, March 2017.

Oosterveld-Vlug MG, Onwuteaka-Philipsen B, ten Koppel M, van Hout H, Smets T, Pivodic L, Tanghe M, van den Noortgate N, Hockley J, Payne S, Collingridge Moore D, Kijowska V, Szczerbińska K, Kylänen M, Leppäaho S, Mercuri C, Rossi P, Gambassi G, Bassal C, Morgan de Paula E, Engels Y, Deliens L, van den Block L, Pasman HRW, on behalf of the PACE trial group. Evaluating the implementation of the PACE Steps to Success Programme in long-term care facilities in seven countries according to the RE-AIM framework. Implementation Science (2019) 14:107.

Oosterveld-Vlug MG, Pasman HRW, ten Koppel M, van Hout HPJ, van der Steen JT, Collingridge Moore D, Deliens L, Gambassi G, Kylänen M,  Smets T, Szczerbińska K, Van den Block L. & Onwuteaka-Philipsen BD (2018). Physician involvement and recognition of the resident’s last phase of life in long-term care facilities: findings from the PACE cross-sectional study in 6 European countries. JAMDA. Published online: 2018 October 23.

Pivodic L, Smets T, Van Den Noortgate N, Onwuteaka-Philipsen BD, Engels Y,  Szczerbińska K, Finne-Soveri H, Froggatt K, Gambassi G, Deliens L, Van den Block L, on behalf of PACE (2018). Quality of dying and quality of end-of-life care of nursing home residents in six European countries: an epidemiological study. Palliat Med. Published online:  2018 October 1.

Smets T, Onwuteaka-Philipsen B, Miranda R, Pivodic L, Tanghe M, van Hout H, Pasman HRW, Oosterveld-Vlug M, Piers R, Van Den Noortgate N, Wichmann AB, Engels Y, Vernooij-Dassen M, Hockley J, Froggatt K, Payne S, Szczerbińska K, Kylänen M, Leppäaho S, Barańska I, Gambassi G, Pautex S, Bassal C, Deliens L, Van den Block L; PACE trial group (2018). Integrating palliative care in long-term care facilities across Europe (PACE): protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries. BMC Palliat Care. Published online: 2018 March 12.

Smets T, Pivodic L, Piers R, Pasman HRW, Engels Y, Szczerbińska K, Kylänen M, Gambassi G, Payne S, Deliens L, Van den Block L, on behalf of PACE (2018). The palliative care knowledge of nursing home staff: The EU FP7 PACE cross-sectional survey in 322 nursing homes in six European countries. Palliative Medicine. Published Online: 2018 July 4.

ten Koppel M, Onwuteaka-Philipsen B, Kylänen M, Van den Block L, Smets T, Deliens L, Gambassi G, Payne S, Szczerbińska K & Pasman HRW (2018). Care staff's self-efficacy regarding end-of-life communication in the long-term care setting: results of the PACE cross-sectional study in six European countries. International Journal of Nursing Studies. Published online: 2019 January 30.

ten Koppel M,  Onwuteaka-Philipsen BD, Van den Block L, Deliens L, Gambassi G, Heymans MW, Kylänen M, Oosterveld-Vlug MG, Pasman R, Payne S, Smets T, Szczerbińska K, Twisk J, van der Steen J, on behalf of PACE (2019). Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE). Palliative Medicine 2019, Vol. 33(9). 

Van den Block L, Smets T, van Dop N, Adang E, Andreasen P, Collingridge Moore D, Engels Y, Finne-Soveri H, Froggatt K, Gambassi G, Kijowska V, Onwuteaka-Philipsen B, Pasman HR, Payne S, Piers R, Szczerbińska K, Ten Koppel M, Van Den Noortgate N, van der Steen JT, Vernooij-Dassen M, Deliens L (2016). PACE. Comparing Palliative Care in Care Homes Across Europe (PACE): Protocol of a Cross-sectional Study of Deceased Residents in 6 EU Countries. J Am Med Dir Assoc. Published online: 2016 May 6.

Van den Block L, Onwuteaka-Philipsen B, Parent AS (2017). Changing attitudes to palliative care for older people. Impact, Volume 2017, Number 4, May 2017, pp. 34-36(3).

Wichmann AB, Adang EMM, Vissers KCP, Szczerbińska K, Kylänen M, Payne S, Gambassi G, Onwuteaka-Philipsen B, Smets T, Van den Block L, Deliens L, Vernooij-Dassen MJFJ & Engels Y and PACE consortium  (2018). Technical-efficiency analysis of end-of-life care in long-term care facilities within Europe: a cross-sectional study of deceased residents in 6 EU countries (PACE). PLoS One. Published online: 2019 September 25.